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Impact Factor

Patient Related Outcome Measures

ISSN: 1179-271X

Archive: Volume 14, 2023

Original Research

The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises

Campbell A, Rizio AA, McCausland KL, Iorga S, Yen GP, Paulose J, Lee S

Published Date: 28 November 2023

Original Research

Psychometric Analysis of the Patient-Reported Hypoparathyroidism Symptom Diary Symptom Subscale Using Data from Two Clinical Trials

Nelson L, Ing SW, Rubin MR, Ma J, Martin S, Sen R, Ayodele O

Published Date: 28 November 2023

Original Research

Quantitative and Qualitative Exploration of Meaningful Change on the Vineland Adaptive Behavior Scales (Vineland™-II) in Children and Adolescents with Autism Without Intellectual Disability Following Participation in a Clinical Trial

Clinch S, Hudgens S, Gibbons E, Willgoss T, Smith J, Polek E, Burbridge C

Published Date: 20 November 2023

Original Research

Qualitative Exploration in Exit Interviews of Changes Observed in Clinical Trials for Individuals with Autism Spectrum Disorder Without Intellectual Disability

Chladek M, Burbridge C, Gibbons E, Willgoss T, Smith J, Clinch S

Published Date: 21 November 2023

Review

Impact of Ravulizumab on Patient Outcomes and Quality of Life in Generalized Myasthenia Gravis

Antozzi C, Mantegazza R

Published Date: 18 October 2023

Short Report

Association Between Hematologic Response and Change in Health-Related Quality of Life Among Patients with Light-Chain (AL) Amyloidosis

Rizio AA, McCausland KL, Carty MK, Conrad A, Quock TP

Published Date: 10 October 2023

Review

Impact of Safinamide on Patient-Reported Outcomes in Parkinson’s Disease

Espinoza-Vinces C, Villino-Rodríguez R, Atorrasagasti-Villar A, Martí-Andrés G, Luquin MR

Published Date: 10 October 2023

Corrigendum

Development and Validation of a Revised Instrument to Measure Burden of Long-Term Medicines Use: The Living with Medicines Questionnaire Version 3 [Corrigendum]

Katusiime B, Corlett SA, Krska J

Published Date: 10 October 2023

Original Research

Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ)

Bissenbakker KH, Møller A, Jønsson ABR, Brodersen JB

Published Date: 10 October 2023

Original Research

Disutilities Associated with Intravenous Iron Infusions: Results from a Time Trade-off Survey and Diminishing Marginal Utility Model for Treatment Attributes in China

Hu S, Wu D, Wu J, Zhang Y, Bøgelund M, Pöhlmann J, Pollock RF

Published Date: 26 September 2023

Original Research

The Effect of Armed Conflict on Treatment Interruption, Its Outcome and Associated Factors Among Chronic Disease Patients in North East, Amhara, Ethiopia, 2022

Mesfin B, Mersha Demise A, Shiferaw M, Gebreegziabher F, Girmaw F

Published Date: 24 August 2023

Short Report

Sensitivity for Change Analyses of the Patient-Reported Outcomes in Obesity (PROS) Questionnaire: A Prospective Cohort Study

Hegland PA, Kolotkin RL, Andersen JR

Published Date: 1 August 2023

Original Research

The PCQ-Infertility Revised: A New Digital Instrument to Measure Treatment Satisfaction of Fertility Patients

van der Kolk L, Smit E, Bloemer J, van Wijk LM

Published Date: 18 July 2023

Original Research

The Transthyretin Amyloidosis – Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure

O'Connor M, Hsu K, Broderick L, McCausland KL, LaGasse K, Rebello S, Carty M, Lousada I

Published Date: 7 July 2023

Methodology

Studies on Reliability and Measurement Error of Measurements in Medicine – From Design to Statistics Explained for Medical Researchers

Mokkink LB, Eekhout I, Boers M, van der Vleuten CP, de Vet HC

Published Date: 7 July 2023

Original Research

Risk Factors and Prognosis in Anti-NMDA Receptor Encephalitis Patients with Disturbance of Consciousness

Gong Z, Lao D, Huang F, Lv S, Mao F, Huang W

Published Date: 14 June 2023

Original Research

Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks

Beukelman T, Long MD, Rhee RL, Kappelman MD, Merkel PA, Nowell WB, Clinton C, Ringold S, Del Gaizo V, Price B, Shaw DG, Venkatachalam S, Cuthbertson D, Xie F, Zhang X, Curtis JR

Published Date: 13 June 2023

Review

Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group

Rizio AA, White MK, D’Souza A, Hsu K, Schmitt P, Quock TP, Signorovitch J, Lousada I, Sanchorawala V

Published Date: 18 May 2023

Original Research

Incidence and Associated Factors of Postoperative Undesirable Anesthetic Outcomes Among Surgical Patients at Referral Hospitals in Amhara Region, Ethiopia: A Multi-Center Study

Admassie BM, Admass BA, Yaregal Melesse D

Published Date: 16 May 2023

Original Research

Pregnant Women’s Experiences with Midwifery-Led Antenatal Care Services in Peri-Urban Communities in Karachi, Pakistan

Yazdani NS, Haider KA, Khan A, Jaffar Zaidi SA, Rajani A, Nisar I, Jehan F, Hoodbhoy Z

Published Date: 9 May 2023

Review

Patient-Reported Outcomes in Ovarian Cancer: Facilitating and Enhancing the Reporting of Symptoms, Adverse Events, and Subjective Benefit of Treatment in Clinical Trials and Clinical Practice

Campbell R, King MT, Stockler MR, Lee YC, Roncolato FT, Friedlander ML

Published Date: 8 May 2023

Original Research

Quantitative Global Survey Results of Acute Back Pain Sufferers Across Four Countries

Maybaum N, Rios-Martinez S, Johnson M

Published Date: 3 May 2023

Original Research

Magnitude, Distribution and Contextual Risk Enhancing Predictors of High 10-Year Cardiovascular Risk Among Diabetic Patients in Tanzania

Kassam N, Surani S, Hameed K, Aghan E, Mayenga R, Matei I, Jengo G, Bakshi F, Mbithe H, Orwa J, Udeani G, Somji S

Published Date: 1 May 2023

Original Research

Incidence and Predictors of Mortality Among Patients with Traumatic Brain Injury at University of Gondar Comprehensive Specialized Hospital, Northwest Ethiopia: A Retrospective Follow-Up Study

Tegegne NG, Fentie DY, Tegegne BA, Admassie BM

Published Date: 5 April 2023

Original Research

Content Validation of Patient-Reported Sleep Measures and Development of a Conceptual Model of Sleep Disturbance in Patients with Moderate-to-Severe, Uncontrolled Asthma

Khan AH, Kosa K, De Prado Gomez L, Whalley D, Kamat S, Clark M

Published Date: 23 March 2023

Original Research

Acceptability and Feasibility of Delivering Decision Aids to Veterans for Management of Knee Osteoarthritis – A Pilot Study

Reilly CA, Rice ML, Parker DJ, Goodney PP, Lurie JD, Ibrahim SA, Henderson ER

Published Date: 22 March 2023

Review

Methodological Quality of PROMs in Psychosocial Consequences of Colorectal Cancer Screening: A Systematic Review

Gram EG, á Rogvi J, Heiberg Agerbeck A, Martiny F, Bie AKL, Brodersen JB

Published Date: 14 March 2023

Original Research

NIH Toolbox Emotion Battery Findings Among People with HIV: Normative Comparisons and Clinical Associations

Brody LA, Kamalyan L, Karcher K, Guarena LA, Bender AA, McKenna BS, Umlauf A, Franklin D, Marquine MJ, Heaton RK

Published Date: 15 February 2023

Review

Impact of Belimumab on Patient-Reported Outcomes in Systemic Lupus Erythematosus: Insights from Clinical Trials and Real-World Evidence

Gomez A, Enman Y, Parodis I

Published Date: 19 January 2023