Patient Related Outcome Measures

ISSN: 1179-271X

Journal Articles:

Patient Related Outcome Measures and Social Determinants of Health in Chronic Disease

Social determinants of health (SDH) are the non-medical factors impacting health outcomes. SDH comprise a set of process outcomes that may help or hinder specific populations to get healthy, stay healthy and importantly to access optimal healthcare resources in their communities. The shift to value-based care seeks to incentivize prevention of illness and chronic disease through appropriate lifestyle behaviors, but we also need measures to address these SDH in order to overcome these longstanding inequities and improve outcomes. This Thematic Series considers all SDH in chronic disease – such as diabetes, COPD, kidney disease, and heart disease.

Review

Impact of Belimumab on Patient-Reported Outcomes in Systemic Lupus Erythematosus: Insights from Clinical Trials and Real-World Evidence

Gomez A, Enman Y, Parodis I

Published Date: 19 January 2023

Original Research

NIH Toolbox Emotion Battery Findings Among People with HIV: Normative Comparisons and Clinical Associations

Brody LA, Kamalyan L, Karcher K, Guarena LA, Bender AA, McKenna BS, Umlauf A, Franklin D, Marquine MJ, Heaton RK

Published Date: 15 February 2023

Review

Methodological Quality of PROMs in Psychosocial Consequences of Colorectal Cancer Screening: A Systematic Review

Gram EG, á Rogvi J, Heiberg Agerbeck A, Martiny F, Bie AKL, Brodersen JB

Published Date: 14 March 2023

Original Research

Cross-Sectional Quantitative Evaluation of a Novel Patient-Reported Outcome Measure in Familial Chylomicronemia Syndrome

Brown TM, Vera-Llonch M, Kanu C, Sikora Kessler A, Yarlas A, Fehnel SE

Published Date: 15 February 2024

Original Research

Content Validation of Patient-Reported Sleep Measures and Development of a Conceptual Model of Sleep Disturbance in Patients with Moderate-to-Severe, Uncontrolled Asthma

Khan AH, Kosa K, De Prado Gomez L, Whalley D, Kamat S, Clark M

Published Date: 23 March 2023

Original Research

Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy

Quinn J, Delaney KA, Wong WY, Miesbach W, Bullinger M

Published Date: 18 July 2022

Original Research

Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks

Beukelman T, Long MD, Rhee RL, Kappelman MD, Merkel PA, Nowell WB, Clinton C, Ringold S, Del Gaizo V, Price B, Shaw DG, Venkatachalam S, Cuthbertson D, Xie F, Zhang X, Curtis JR

Published Date: 13 June 2023

Review