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Patient Related Outcome Measures


Journal Articles:

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Validating the Patient Experience with Treatment and Self-Management (PETS), a patient-reported measure of treatment burden, in people with diabetes

Rogers EA, Yost KJ, Rosedahl JK, Linzer M, Boehm DH, Thakur A, Poplau S, Anderson RT, Eton DT

Patient Related Outcome Measures 2017, 8:143-156

Published Date: 9 November 2017

Non-valvular atrial fibrillation: impact of apixaban on patient outcomes

Ioannou A, Tsappa I, Metaxa S, Missouris CG

Patient Related Outcome Measures 2017, 8:121-131

Published Date: 3 November 2017

A pilot study of subjective well-being in colorectal cancer patients and their caregivers

Graham J, Spiliopoulou P, Arbuckle R, Bridge JA, Cassidy J

Patient Related Outcome Measures 2017, 8:111-119

Published Date: 19 October 2017

The health and life path of rare disease patients: results of the 2015 French barometer

Heuyer T, Pavan S, Vicard C

Patient Related Outcome Measures 2017, 8:97-110

Published Date: 13 September 2017

Initial development of a patient-reported outcome measure of experience with cognitive impairment associated with schizophrenia

Welch LC, Trudeau JJ, Silverstein SM, Sand M, Henderson DC, Rosen RC

Patient Related Outcome Measures 2017, 8:71-81

Published Date: 8 June 2017

London Measure of Unplanned Pregnancy: guidance for its use as an outcome measure

Hall JA, Barrett G, Copas A, Stephenson J

Patient Related Outcome Measures 2017, 8:43-56

Published Date: 6 April 2017

Patient-rated versus proxy-rated cognitive and functional measures in older adults

Howland M, Allan KC, Carlton CE, Tatsuoka C, Smyth KA, Sajatovic M

Patient Related Outcome Measures 2017, 8:33-42

Published Date: 15 March 2017

An assessment of meaning in life-threatening illness: development of the Healing Experience in All Life Stressors (HEALS)

Sloan DH, BrintzenhofeSzoc K, Kichline T, Baker K, Pinzon J, Tafe C, Li L, Cheng MJ, Berger A

Patient Related Outcome Measures 2017, 8:15-21

Published Date: 16 February 2017

Longitudinal analysis of quality of life in patients with undifferentiated connective tissue diseases

Iudici M, Irace R, Riccardi A, Cuomo G, Vettori S, Valentini G

Patient Related Outcome Measures 2017, 8:7-13

Published Date: 2 February 2017

Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion

Kelly L, Potter CM, Hunter C, Gibbons E, Fitzpatrick R, Jenkinson C, Peters M

Patient Related Outcome Measures 2016, 7:183-193

Published Date: 16 November 2016

Rasch analysis of the Western Ontario Osteoarthritis of the Shoulder index – the Danish version

Moeini S, Rasmussen JV, Klausen TW, Brorson S

Patient Related Outcome Measures 2016, 7:173-181

Published Date: 14 November 2016

Measuring medicine-related experiences from the patient perspective: a systematic review

Katusiime B, Corlett S, Reeve J, Krska J

Patient Related Outcome Measures 2016, 7:157-171

Published Date: 4 October 2016

Quality of life and use of health care resources among patients with chronic depression

Villoro R, Merino M, Hidalgo-Vega A

Patient Related Outcome Measures 2016, 7:145-155

Published Date: 26 September 2016

Patient-reported symptom distress, and most bothersome issues, before and during cancer treatment

Hong F, Blonquist TM, Halpenny B, Berry DL

Patient Related Outcome Measures 2016, 7:127-135

Published Date: 12 September 2016

The Long-Term Conditions Questionnaire: conceptual framework and item development

Peters M, Potter CM, Kelly L, Hunter C, Gibbons E, Jenkinson C, Coulter A, Forder J, Towers AM, A'Court C, Fitzpatrick R

Patient Related Outcome Measures 2016, 7:109-125

Published Date: 30 August 2016

Systematic review of measurement properties of patient-reported outcome measures used in patients undergoing hip and knee arthroplasty

Harris K, Dawson J, Gibbons E, Lim CR, Beard DJ, Fitzpatrick R, Price AJ

Patient Related Outcome Measures 2016, 7:101-108

Published Date: 25 July 2016

Characterizing neuropathic pain profiles: enriching interpretation of painDETECT

Cappelleri JC, Koduru V, Bienen EJ, Sadosky A

Patient Related Outcome Measures 2016, 7:93-99

Published Date: 5 July 2016

Cultural adaptation: translatability assessment and linguistic validation of the patient-reported outcome instrument for irritable bowel syndrome with diarrhea

Delgado-Herrera L, Lasch K, Popielnicki A, Nishida A, Arbuckle R, Banderas B, Zentner S, Gagainis I, Zeiher B

Patient Related Outcome Measures 2016, 7:81-92

Published Date: 22 June 2016

Validation of the Oxford Participation and Activities Questionnaire

Morley D, Dummett S, Kelly L, Dawson J, Fitzpatrick R, Jenkinson C

Patient Related Outcome Measures 2016, 7:73-80

Published Date: 15 June 2016

The role of memories on health-related quality of life after intensive care unit care: an unforgettable controversy?

Orwelius L, Teixeira-Pinto A, Lobo C, Costa-Pereira A, Granja C

Patient Related Outcome Measures 2016, 7:63-71

Published Date: 4 June 2016

A retrospective study of patient outcomes and satisfaction following pinnaplasty

Hope N, Smith CP, Cullen JR, McCluney N

Patient Related Outcome Measures 2016, 7:49-53

Published Date: 24 May 2016

Eye Care Quality and Accessibility Improvement in the Community (EQUALITY): impact of an eye health education program on patient knowledge about glaucoma and attitudes about eye care

Rhodes LA, Huisingh CE, McGwin Jr G, Mennemeyer ST, Bregantini M, Patel N, Saaddine J, Crews JE, Girkin CA, Owsley C

Patient Related Outcome Measures 2016, 7:37-48

Published Date: 19 May 2016

Structure, process, and outcomes of care in a telemonitoring program for patients with type 2 diabetes

Nocella JM, Dickson VV, Cleland CM, Melkus GD

Patient Related Outcome Measures 2016, 7:19-28

Published Date: 1 March 2016

Impact of tofacitinib on patient outcomes in rheumatoid arthritis – review of clinical studies

Boyce EG, Vyas D, Rogan EL, Valle-Oseguera CS, O’Dell KM

Patient Related Outcome Measures 2016, 7:1-12

Published Date: 14 January 2016

Functional dysphonia: strategies to improve patient outcomes

Behlau M, Madazio G, Oliveira G

Patient Related Outcome Measures 2015, 6:243-253

Published Date: 1 December 2015

Improving outcomes in patients with melanoma: strategies to ensure an early diagnosis

Voss RK, Woods TN, Cromwell KD, Nelson KC, Cormier JN

Patient Related Outcome Measures 2015, 6:229-242

Published Date: 6 November 2015

Developing a handheld record for patients with cystic fibrosis

Narayan O, Davies S, Tibbins C, Rees JHM, Lenney W, Gilchrist FJ

Patient Related Outcome Measures 2015, 6:225-228

Published Date: 13 August 2015

Validity and reliability of the Patient-Reported Arthralgia Inventory: validation of a newly-developed survey instrument to measure arthralgia

Castel LD, Wallston KA, Saville BR, Alvarez JR, Shields BD, Feurer ID, Cella DF

Patient Related Outcome Measures 2015, 6:205-214

Published Date: 28 July 2015

The Outcomes and Experiences Questionnaire: development and validation

Gibbons E, Hewitson P, Morley D, Jenkinson C, Fitzpatrick R

Patient Related Outcome Measures 2015, 6:179-189

Published Date: 16 July 2015

Performance of the measures of processes of care for adults and service providers in rehabilitation settings

Bamm EL, Rosenbaum P, Wilkins S, Stratford P

Patient Related Outcome Measures 2015, 6:157-165

Published Date: 8 June 2015

Development of the Oxford Participation and Activities Questionnaire: constructing an item pool

Kelly L, Jenkinson C, Dummett S, Dawson J, Fitzpatrick R, Morley D

Patient Related Outcome Measures 2015, 6:145-155

Published Date: 21 May 2015

User preference for a portable syringe pump for iloprost infusion

Laria A, Lurati AM, Re KA, Marrazza MG, Mazzocchi D, Farina A, Scarpellini M

Patient Related Outcome Measures 2015, 6:139-144

Published Date: 19 May 2015

Optimal delivery of colorectal cancer follow-up care: improving patient outcomes

Jorgensen ML, Young JM, Solomon MJ

Patient Related Outcome Measures 2015, 6:127-138

Published Date: 18 May 2015

Finalizing a measurement framework for the burden of treatment in complex patients with chronic conditions

Eton DT, Ridgeway JL, Egginton JS, Tiedje K, Linzer M, Boehm DH, Poplau S, Ramalho de Oliveira D, Odell L, Montori VM, May CR, Anderson RT

Patient Related Outcome Measures 2015, 6:117-126

Published Date: 27 March 2015

Stroke warning campaigns: delivering better patient outcomes? A systematic review

Mellon L, Doyle F, Rohde D, Williams D, Hickey A

Patient Related Outcome Measures 2015, 6:61-73

Published Date: 25 February 2015

Cost-effectiveness analysis of antiretroviral therapy in a cohort of HIV-infected patients starting first-line highly active antiretroviral therapy during 6 years of observation

Maggiolo F, Colombo GL, Di Matteo S, Bruno GM, Astuti N, Di Filippo E, Masini G, Bernardini C

Patient Related Outcome Measures 2015, 6:53-60

Published Date: 17 February 2015

Quality of life in adolescent and young adult cancer patients: a systematic review of the literature

Quinn GP, Gonçalves V, Sehovic I, Bowman ML, Reed DR

Patient Related Outcome Measures 2015, 6:19-51

Published Date: 17 February 2015

Misperceptions of weight status among adolescents: sociodemographic and behavioral correlates

Bodde AE, Beebe TJ, Chen LP, Jenkins S, Perez-Vergara K, Finney Rutten LJ, Ziegenfuss JY

Patient Related Outcome Measures 2014, 5:163-171

Published Date: 11 December 2014

Peer navigation in African American breast cancer survivors

Mollica MA, Nemeth LS, Newman SD, Mueller M, Sterba K

Patient Related Outcome Measures 2014, 5:131-144

Published Date: 7 November 2014

Deriving a preference-based utility measure for cancer patients from the European Organisation for the Research and Treatment of Cancer's Quality of Life Questionnaire C30: a confirmatory versus exploratory approach

Costa DSJ, Aaronson NK, Fayers PM, Grimison PS, Janda M, Pallant JF, Rowen D, Velikova G, Viney R, Young TA, King MT

Patient Related Outcome Measures 2014, 5:119-129

Published Date: 6 November 2014

The Ukrainian version of the pediatric Canadian acute respiratory illness and flu scale: a linguistic validation study

Gerasimov SV, Belova HA, Pavuk HL, Seniuk IM, Strekalina YI

Patient Related Outcome Measures 2014, 5:111-117

Published Date: 29 October 2014

Assessment of patient satisfaction with the preoperative anesthetic evaluation

Gebremedhn EG, Nagaratnam V

Patient Related Outcome Measures 2014, 5:105-110

Published Date: 16 September 2014

Hablamos juntos (together we speak): a brief patient-reported measure of the quality of interpretation

Talamantes E, Moreno G, Guerrero LR, Mangione CM, Morales LS

Patient Related Outcome Measures 2014, 5:87-92

Published Date: 9 September 2014

Patient perceptions of electronic medical records use and ratings of care quality

Finney Rutten LJ, Vieux SN, St Sauver JL, Arora NK, Moser RP, Beckjord EB, Hesse BW

Patient Related Outcome Measures 2014, 5:17-23

Published Date: 21 March 2014

Harmonizing and consolidating the measurement of patient-reported information at health care institutions: a position statement of the Mayo Clinic

Eton DT, Beebe TJ, Hagen PT, Halyard MY, Montori VM, Naessens JM, Sloan JA, Thompson CA, Wood DL

Patient Related Outcome Measures 2014, 5:7-15

Published Date: 10 February 2014

The Oxford Participation and Activities Questionnaire: study protocol

Morley D, Dummett S, Kelly L, Dawson J, Fitzpatrick R, Jenkinson C

Patient Related Outcome Measures 2014, 5:1-6

Published Date: 11 December 2013

Optimal management of severe nausea and vomiting in migraine: improving patient outcomes

Láinez MJ, García-Casado A, Gascón F

Patient Related Outcome Measures 2013, 4:61-73

Published Date: 11 October 2013

Translation and validation of the Western Ontario Osteoarthritis of the Shoulder (WOOS) index – the Danish version

Rasmussen JV, Jakobsen J, Olsen BS, Brorson S

Patient Related Outcome Measures 2013, 4:49-54

Published Date: 18 September 2013

Identifying functional decline: a methodological challenge

Grimmer K, Beaton K, Hendry K

Patient Related Outcome Measures 2013, 4:37-48

Published Date: 22 August 2013

Development and initial validation of a computer-administered health literacy assessment in Spanish and English: FLIGHT/VIDAS

Ownby RL, Acevedo A, Waldrop-Valverde D, Jacobs RJ, Caballero J, Davenport R, Homs AM, Czaja SJ, Loewenstein D

Patient Related Outcome Measures 2013, 4:21-35

Published Date: 19 August 2013

A systematic review of patient-reported measures of burden of treatment in three chronic diseases

Eton DT, Elraiyah TA, Yost KJ, Ridgeway JL, Johnson A, Egginton JS, Mullan RJ, Murad MH, Erwin PJ, Montori VM

Patient Related Outcome Measures 2013, 4:7-20

Published Date: 5 June 2013

Impact of controlling atrial fibrillation on outcomes relevant to the patient: focus on dronedarone

Chahal CAA, Ali O, Hunter RJ, Schilling RJ

Patient Related Outcome Measures 2012, 3:95-103

Published Date: 19 December 2012

Recovery from eating disorders: psychometric properties of a patient-related measure

Pettersen G, Thune-Larsen K-B, Rosenvinge JH

Patient Related Outcome Measures 2012, 3:85-93

Published Date: 23 November 2012

Patient-reported outcome 2 years after lung transplantation: does the underlying diagnosis matter?

Santana MJ, Feeny D, Ghosh S, Lien DC

Patient Related Outcome Measures 2012, 3:79-84

Published Date: 19 November 2012

Satisfaction levels and asthma control amongst Malaysian asthmatic patients on budesonide/formoterol maintenance and reliever therapy: experience in a real-life setting

Abdul Manap R, Loh LC, Tengku Ismail TS, Muttalif AR, Simon GK, Toh RB, Norhaya MR, Md Tarekh NA, Hashim CW, Abdul Rani MF, Ahmad Mahayiddin A

Patient Related Outcome Measures 2012, 3:71-78

Published Date: 7 November 2012

Assessment set for evaluation of clinical outcomes in multiple sclerosis: psychometric properties

Rasova K, Martinkova P, Vyskotova J, Sedova M

Patient Related Outcome Measures 2012, 3:59-70

Published Date: 11 October 2012

A qualitative assessment of an online support community for ovarian cancer patients

Gill PS, Whisnant B

Patient Related Outcome Measures 2012, 3:51-58

Published Date: 4 October 2012

Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study

Eton DT, Ramalho de Oliveira D, Egginton JS, Ridgeway JL, Odell L, May CR, Montori VM

Patient Related Outcome Measures 2012, 3:39-49

Published Date: 24 August 2012

Patient perspectives on Parkinson’s disease therapy in Japan and the United States: results of two patient surveys

Hattori N, Fujimoto K, Kondo T, Murata M, Stacy M

Patient Related Outcome Measures 2012, 3:31-38

Published Date: 11 July 2012

Drug-eluting coronary stents – focus on improved patient outcomes

Jaffery Z, Prasad A, Lee JH, White CJ

Patient Related Outcome Measures 2011, 2:161-174

Published Date: 22 September 2011

Effectiveness of a physiotherapy-initiated telephone triage of orthopedic waitlist patients

Morris J, Grimmer-Somers K, Kumar S, Murphy K, Gilmore L, Ashman B, Perera C, Vine K, Coulter C

Patient Related Outcome Measures 2011, 2:151-159

Published Date: 22 August 2011

Rasch analysis of the Dutch version of the Oxford elbow score

de Haan J, Schep NW, Tuinebreijer WE, Patka P, den Hartog D

Patient Related Outcome Measures 2011, 2:145-149

Published Date: 2 August 2011

Modified Severity of Dyspepsia Assessment pain scale: a new tool for measuring upper abdominal pain in osteoarthritis patients taking NSAIDs

Welle J, Fort J, Crawley J, Cryer B, Dickerhoof R, Turner MP, Miller KL

Patient Related Outcome Measures 2011, 2:135-143

Published Date: 23 June 2011

Psychometric validation of the experience with allergic rhinitis nasal spray questionnaire

Crawford B, Stanford RH, Wong AY, Dalal AA, Bayliss MS

Patient Related Outcome Measures 2011, 2:127-133

Published Date: 16 June 2011

Development of a questionnaire to assess experience and preference of intranasal corticosteroids in patients with allergic rhinitis

Crawford B, Stanford R, Wong AY, Dalal A, Bayliss M

Patient Related Outcome Measures 2011, 2:119-126

Published Date: 16 June 2011

Nicotine replacement therapies: patient safety and persistence

Ferguson SG, Shiffman S, Gitchell JG

Patient Related Outcome Measures 2011, 2:111-117

Published Date: 14 June 2011

Patient-centered care and its effect on outcomes in the treatment of asthma

Qamar N, Pappalardo AA, Arora VM, Press VG

Patient Related Outcome Measures 2011, 2:81-109

Published Date: 3 June 2011

Patients’ and caregivers’ experiences of the impact of Parkinson’s disease on health status

Horacio Chiong-Rivero, Gery W Ryan, Charles Flippen, et al

Patient Related Outcome Measures 2011, 2:57-70

Published Date: 9 March 2011

Angiotensin II type 1 receptor antagonists in the treatment of hypertension in elderly patients: focus on patient outcomes

Artavazd Tadevosyan, Eric J MacLaughlin, Vardan T Karamyan

Patient Related Outcome Measures 2011, 2:27-39

Published Date: 25 January 2011

Patient satisfaction with obstetricians and gynecologists compared with other specialties: analysis of US self-reported survey data

Isha Patel, Jongwha Chang, Jatin Srivastava, et al

Patient Related Outcome Measures 2011, 2:21-26

Published Date: 14 January 2011

Antiplatelet therapy in acute coronary syndromes: current agents and impact on patient outcomes

Hussam M Tayeb, Adam J Nelson, Scott R Willoughby, et al

Patient Related Outcome Measures 2011, 2:7-19

Published Date: 30 December 2010

Nail psoriasis as a severity indicator: results from the PsoReal study

Marc A Radtke, Anna K Langenbruch, I Schäfer, et al

Patient Related Outcome Measures 2011, 2:1-6

Published Date: 22 December 2010

Patient satisfaction with inpatient care provided by the Sydney Gynecological Oncology Group

Vivek Arora, Shannon Philp, Kathryn Nattress, et al

Patient Related Outcome Measures 2010, 1:179-184

Published Date: 24 November 2010

Potential value of electronic prescribing in health economic and outcomes research

Catherine E Cooke, Brian J Isetts, Thomas E Sullivan, et al

Patient Related Outcome Measures 2010, 1:163-178

Published Date: 18 November 2010

A prospective study assessing patient satisfaction at a large tertiary gynecologic oncology/dysplasia unit

Selvan Pather, Davina Tai, Shannon Philp, et al

Patient Related Outcome Measures 2010, 1:149-152

Published Date: 11 October 2010

Quality of life information and trust in physicians among families of children with life-limiting conditions

I-Chan Huang, Kelly M Kenzik, Tuli Y Sanjeev, et al

Patient Related Outcome Measures 2010, 1:141-148

Published Date: 1 October 2010

Self-assessed health of young-to-middle-aged adults in an English-speaking Caribbean nation

Paul A Bourne, Neva South-Bourne

Patient Related Outcome Measures 2010, 1:127-140

Published Date: 28 September 2010

Patient outcome in migraine prophylaxis: the role of psychopharmacological agents

Maurizio Pompili, Gianluca Serafini, Marco Innamorati, et al

Patient Related Outcome Measures 2010, 1:107-118

Published Date: 17 September 2010

The use of patient-reported outcomes becomes standard practice in the routine clinical care of lung–heart transplant patients

Maria J Santana, David Feeny, Justin Weinkauf, et al.

Patient Related Outcome Measures 2010, 1:93-105

Published Date: 3 September 2010

Public and private health care utilization differences between socioeconomic strata in Jamaica

Paul A Bourne, Denise Eldemire-Shearer, Tomlin J Paul, et al.

Patient Related Outcome Measures 2010, 1:81-91

Published Date: 1 September 2010

Health-related restrictions of choices and choosing: implications for quality of life and clinical interventions

Barry J Gurland, Huai Cheng, Mathew S Maurer

Patient Related Outcome Measures 2010, 1:73-80

Published Date: 11 August 2010

Developing brief fatigue short forms calibrated to a common mathematical metric: is content-balancing important?

Karon F Cook, Seung W Choi, Kurt L Johnson, et al

Patient Related Outcome Measures 2010, 1:65-71

Published Date: 10 August 2010

A brief assessment of physical functioning for prostate cancer patients

Jin-Shei Lai, Rita Bode, Hwee-Lin Wee, et al

Patient Related Outcome Measures 2010, 1:51-56

Published Date: 18 June 2010

Health literacy and health seeking behavior among older men in a middle-income nation

Paul A Bourne, Chloe Morris, Christopher AD Charles, et al

Patient Related Outcome Measures 2010, 1:39-49

Published Date: 26 May 2010

Perspectives on electronic medical records adoption: electronic medical records (EMR) in outcomes research

Dan Belletti, Christopher Zacker, C Daniel Mullins

Patient Related Outcome Measures 2010, 1:29-37

Published Date: 30 April 2010

Patient attitudes and preferences regarding literacy screening in ambulatory cancer care clinics

Elizabeth A Hahn, Sofia F Garcia, Hongyan Du, et al

Patient Related Outcome Measures 2010, 1:19-27

Published Date: 28 April 2010

Is less more? A preliminary investigation of the number of response categories in self-reported pain

Karon F Cook, David Cella, Erin L Boespflug, et al

Patient Related Outcome Measures 2010, 1:9-18

Published Date: 14 May 2010

Gout disease-specific quality of life and the association with gout characteristics

Jan D Hirsch, Robert Terkeltaub, Dinesh Khanna, et al

Patient Related Outcome Measures 2010, 1:1-8

Published Date: 31 March 2010