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Clinical Epidemiology is pleased to announce the publication of a special Thematic Series on the Danish clinical quality databases – an important and untapped resource for clinical research.


Danish registries and databases have long become mainstay of clinical research thanks to routine collection of vast amounts of interlinkable health and social data and lifelong follow-up – in a setting of universal access to health care. Registry-based research in a setting of universal record-keeping and health care access is efficient thanks to its relatively low cost, absence of selection bias, and ability to assemble large study populations from historical data. Misclassification of medical events and lack of clinical detail are frequently invoked limitations of epidemiologic research based on administrative and claims records. The Danish clinical quality databases have the potential to ameliorate these shortcomings. This Thematic Series features articles describing 55 Danish clinical quality databases, authored by clinicians and epidemiologists who, on a daily basis, work with Danish clinical quality databases and care for patients whose data are recorded in those databases. These databases, many of which have been founded and initially operated by enthusiastic clinicians, are now in public domain. The medical databases typically cover all patients with a specific disease (e.g. colorectal cancer) or those undergoing a specific surgical procedure (e.g. hip replacement). The databases represent complete cohorts of patients with verified diagnoses, detailed clinical data, and possibility for complete and longitudinal follow-up. 


This Thematic Series on the Danish clinical quality databases highlights and underscores the untapped huge research potential for future clinical research and provides practical information on the databases’ contents and access.

Danish clinical quality databases – an important and untapped resource for clinical research

Sørensen HT, Pedersen L, Jørgensen J, Ehrenstein V

Clinical Epidemiology 2016, 8:425-427

Published Date: 25 October 2016

The Danish Adult Diabetes Registry

Jørgensen ME, Kristensen JK, Reventlov Husted G, Cerqueira CS, Rossing P

Clinical Epidemiology 2016, 8:429-434

Published Date: 25 October 2016

The Danish Anaesthesia Database

Antonsen K, Rosenstock CV, Lundstrøm LH

Clinical Epidemiology 2016, 8:435-438

Published Date: 25 October 2016

The Danish Bladder Cancer Database

Hansen E, Larsson H, Nørgaard M, Thind P, Jensen JB

Clinical Epidemiology 2016, 8:439-443

Published Date: 25 October 2016

Danish Breast Cancer Cooperative Group

Christiansen P, Ejlertsen B, Jensen MB, Mouridsen H

Clinical Epidemiology 2016, 8:445-449

Published Date: 25 October 2016

The Danish Cardiac Rehabilitation Database

Zwisler AD, Rossau HK, Nakano A, Foghmar S, Eichhorst R, Prescott E, Cerqueira C, Soja AMB, Gislason GH, Larsen ML, Andersen UO, Gustafsson I, Thomsen KK, Boye Hansen L, Hammer S, Viggers L, Christensen B, Kvist B, Lindström Egholm C, May O

Clinical Epidemiology 2016, 8:451-456

Published Date: 25 October 2016

The Danish Cerebral Palsy Follow-up Program

Rasmussen HM, Nordbye-Nielsen K, Møller-Madsen B, Johansen M, Ellitsgaard N, Pedersen CR, Rackauskaite G, Engberg H, Pedersen NW

Clinical Epidemiology 2016, 8:457-460

Published Date: 25 October 2016

Danish Childhood Cancer Registry

Schrøder H, Rechnitzer C, Wehner PS, Rosthøj S, Møller JK, Lausen B, Petersen G, Nørgaard M

Clinical Epidemiology 2016, 8:461-464

Published Date: 25 October 2016

Danish Colorectal Cancer Group Database

Ingeholm P, Gögenur I, Iversen LH

Clinical Epidemiology 2016, 8:465-468

Published Date: 25 October 2016

The Danish database for acute and emergency hospital contacts

Lassen AT, Jørgensen H, Jørsboe HB, Odby A, Brabrand M, Steinmetz J, Mackenhauer J, Kirkegaard H, Christiansen CF

Clinical Epidemiology 2016, 8:469-474

Published Date: 25 October 2016

The Danish Depression Database

Videbech P, Deleuran A

Clinical Epidemiology 2016, 8:475-478

Published Date: 25 October 2016

The Danish Fetal Medicine Database

Ekelund CK, Kopp TI, Tabor A, Petersen OB

Clinical Epidemiology 2016, 8:479-483

Published Date: 25 October 2016

Danish Gynecological Cancer Database

Sørensen SM, Bjørn SF, Jochumsen KM, Jensen PT, Thranov IR, Hare-Bruun H, Seibæk L, Høgdall C

Clinical Epidemiology 2016, 8:485-490

Published Date: 25 October 2016

The Danish Head and Neck Cancer database

Overgaard J, Jovanovic A, Godballe C, Grau Eriksen J

Clinical Epidemiology 2016, 8:491-496

Published Date: 25 October 2016

The Danish Heart Failure Registry

Schjødt I, Nakano A, Egstrup K, Cerqueira C

Clinical Epidemiology 2016, 8:497-502

Published Date: 25 October 2016

The Danish Heart Registry

Özcan C, Juel K, Flensted Lassen J, von Kappelgaard LM, Mortensen PE, Gislason G

Clinical Epidemiology 2016, 8:503-508

Published Date: 25 October 2016

The Danish Hip Arthroplasty Register

Gundtoft PH, Varnum C, Pedersen AB, Overgaard S

Clinical Epidemiology 2016, 8:509-514

Published Date: 25 October 2016

The Danish Hysterectomy and Hysteroscopy Database

Topsoee MF, Ibfelt EH, Settnes A

Clinical Epidemiology 2016, 8:515-520

Published Date: 25 October 2016

The Danish Inguinal Hernia Database

Friis-Andersen H, Bisgaard T

Clinical Epidemiology 2016, 8:521-524

Published Date: 25 October 2016

The Danish Intensive Care Database

Christiansen CF, Møller MH, Nielsen H, Christensen S

Clinical Epidemiology 2016, 8:525-530

Published Date: 25 October 2016

The Danish Knee Ligament Reconstruction Registry

Rahr-Wagner L, Lind M

Clinical Epidemiology 2016, 8:531-535

Published Date: 25 October 2016

The Danish Lung Cancer Registry

Jakobsen E, Rasmussen TR

Clinical Epidemiology 2016, 8:537-541

Published Date: 25 October 2016

The Danish Melanoma Database

Hölmich LR, Klausen S, Spaun E, Schmidt G, Gad D, Svane IM, Schmidt H, Lorentzen HF, Ibfelt EH

Clinical Epidemiology 2016, 8:543-548

Published Date: 25 October 2016

The Danish Multiple Sclerosis Treatment Register

Magyari M, Koch-Henriksen N, Sørensen PS

Clinical Epidemiology 2016, 8:549-552

Published Date: 25 October 2016

The Danish National Acute Leukemia Registry

Østgård LSG, Nørgaard JM, Raaschou-Jensen KK, Pedersen RS, Rønnov-Jessen D, Pedersen PT, Dufva IH, Marcher CW, Nielsen OJ, Severinsen MT, Friis LS

Clinical Epidemiology 2016, 8:553-560

Published Date: 25 October 2016

The Danish National Chronic Lymphocytic Leukemia Registry

da Cunha-Bang C, Geisler CH, Enggaard L, Poulsen CB, de Nully Brown P, Frederiksen H, Bergmann OJ, Pulczynski EJ, Pedersen RS, Nielsen LH, Christiansen I, Niemann CU

Clinical Epidemiology 2016, 8:561-565

Published Date: 25 October 2016

The Danish National Chronic Myeloid Neoplasia Registry

Bak M, Ibfelt EH, Stauffer Larsen T, Rønnov-Jessen D, Pallisgaard N, Madelung A, Udby L, Hasselbalch HC, Bjerrum OW, Andersen CL

Clinical Epidemiology 2016, 8:567-572

Published Date: 25 October 2016

The Danish National Database for Obstructive Sleep Apnea

Jennum PJ, Larsen P, Cerqueira C, Schmidt T, Tønnesen P

Clinical Epidemiology 2016, 8:573-576

Published Date: 25 October 2016

Danish National Lymphoma Registry

Arboe B, Josefsson P, Jørgensen J, Haaber J, Jensen P, Poulsen C, Rønnov-Jessen D, Pedersen RS, Pedersen P, Frederiksen M, Pedersen M, de Nully Brown P

Clinical Epidemiology 2016, 8:577-581

Published Date: 25 October 2016

The Danish National Multiple Myeloma Registry

Gimsing P, Holmström MO, Klausen TW, Andersen NF, Gregersen H, Pedersen RS, Plesner T, Pedersen PT, Frederiksen M, Frølund U, Helleberg C, Vangsted A, de Nully Brown P, Abildgaard N

Clinical Epidemiology 2016, 8:583-587

Published Date: 25 October 2016

The Danish National Penile Cancer Quality database

Jakobsen JK, Öztürk B, Søgaard M

Clinical Epidemiology 2016, 8:589-594

Published Date: 25 October 2016

The Danish National Quality Database for Births

Andersson CB, Flems C, Kesmodel US

Clinical Epidemiology 2016, 8:595-599

Published Date: 25 October 2016

The Danish National Register for Asthma

Backer V, Lykkegaard J, Bodtger U, Agertoft L, Korshoej L, Braüner EV

Clinical Epidemiology 2016, 8:601-606

Published Date: 25 October 2016

The Danish National Registry for Biological Therapy in Inflammatory Bowel Disease

Larsen L, Jensen MD, Larsen MD, Nielsen RG, Thorsgaard N, Vind I, Wildt S, Kjeldsen J

Clinical Epidemiology 2016, 8:607-612

Published Date: 25 October 2016

The Danish Registry of Diabetic Retinopathy

Andersen N, Hjortdal JØ, Schielke Kc, Bek T, Grauslund J, Laugesen CS, Lund-Andersen H, Cerqueira C, Andresen J

Clinical Epidemiology 2016, 8:613-619

Published Date: 25 October 2016

The Danish Nephrology Registry

Heaf J

Clinical Epidemiology 2016, 8:621-627

Published Date: 25 October 2016

The Danish Neuro-Oncology Registry

Hansen S

Clinical Epidemiology 2016, 8:629-632

Published Date: 25 October 2016

The Danish Nonmelanoma Skin Cancer Dermatology Database

Lamberg AL, Sølvsten H, Lei U, Vinding GR, Stender IM, Jemec GB, Vestergaard T, Thormann H, Hædersdal M, Dam TN, Olesen AB

Clinical Epidemiology 2016, 8:633-636

Published Date: 25 October 2016

Danish Palliative Care Database

Groenvold M, Adsersen M, Hansen MB

Clinical Epidemiology 2016, 8:637-643

Published Date: 25 October 2016

Danish Pancreatic Cancer Database

Fristrup C, Detlefsen S, Hansen CP, Ladekarl M

Clinical Epidemiology 2016, 8:645-648

Published Date: 25 October 2016

The Danish Prostate Cancer Database

Nguyen-Nielsen M, Høyer S, Friis S, Hansen S, Brasso K, Jakobsen EB, Moe M, Larsson H, Søgaard M, Nakano A, Borre M

Clinical Epidemiology 2016, 8:649-653

Published Date: 25 October 2016

The Danish Quality Database for Cervical Cancer Screening

Rygaard C

Clinical Epidemiology 2016, 8:655-660

Published Date: 25 October 2016

Danish Quality Database for Mammography Screening

Mikkelsen EM, Njor SH, Vejborg I

Clinical Epidemiology 2016, 8:661-666

Published Date: 25 October 2016

The Danish quality database for prehospital emergency medical services

Frischknecht Christensen E, Berlac PA, Nielsen H, Christiansen CF

Clinical Epidemiology 2016, 8:667-671

Published Date: 25 October 2016

Danish Register of chronic obstructive pulmonary disease

Lange P, Tøttenborg SS, Sorknæs AD, Andersen JS, Søgaard M, Nielsen H, Thomsen RW, Nielsen KA

Clinical Epidemiology 2016, 8:673-678

Published Date: 25 October 2016

Danish Registry of Childhood and Adolescent Diabetes

Svensson J, Cerqueira C, Kjærsgaard P, Lyngsøe L, Hertel NT, Madsen M, Mortensen HB, Johannesen J

Clinical Epidemiology 2016, 8:679-683

Published Date: 25 October 2016

The Danish Sarcoma Database

Jorgensen PH, Lausten GS, Pedersen AB

Clinical Epidemiology 2016, 8:685-690

Published Date: 25 October 2016

The Danish Schizophrenia Registry

Baandrup L, Cerqueira C, Haller L, Korshøj L, Voldsgaard I, Nordentoft M

Clinical Epidemiology 2016, 8:691-695

Published Date: 25 October 2016

The Danish Stroke Registry

Johnsen SP, Ingeman A, Hunborg HH, Schaarup SZ, Gyllenborg J

Clinical Epidemiology 2016, 8:697-702

Published Date: 25 October 2016

The Danish Testicular Cancer database

Daugaard G, Kier MGG, Bandak M, Mortensen MS, Larsson H, Søgaard M, Toft BG, Engvad B, Agerbæk M, Holm NV, Lauritsen J

Clinical Epidemiology 2016, 8:703-707

Published Date: 25 October 2016

Danish Urogynaecological Database

Hansen UD, Gradel KO, Larsen MD

Clinical Epidemiology 2016, 8:709-712

Published Date: 25 October 2016

The Danish Vascular Registry, Karbase

Eldrup N, Cerqueira C, de la Motte L, Rathenborg LK, Hansen AK

Clinical Epidemiology 2016, 8:713-718

Published Date: 25 October 2016

The Danish Ventral Hernia Database – a valuable tool for quality assessment and research

Helgstrand F, Jorgensen LN

Clinical Epidemiology 2016, 8:719-723

Published Date: 25 October 2016

The database of the Danish Renal Cancer Group

Petersen AC, Søgaard M, Mehnert F, Larsen EH, Donskov F, Azawi NH, Kromann-Andersen B

Clinical Epidemiology 2016, 8:725-729

Published Date: 25 October 2016

National Database of Geriatrics

Kannegaard PN, Vinding KL, Hare-Bruun H

Clinical Epidemiology 2016, 8:731-735

Published Date: 25 October 2016

The Danish nationwide clinical register for patients with rheumatoid arthritis: DANBIO

Ibfelt EH, Jensen DV, Hetland ML

Clinical Epidemiology 2016, 8:737-742

Published Date: 25 October 2016