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Papers published by Dr Kristen McCausland:
The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises
Campbell A, Rizio AA, McCausland KL, Iorga S, Yen GP, Paulose J, Lee S
Patient Related Outcome Measures 2023, 14:369-381
Published Date: 28 November 2023
Association Between Hematologic Response and Change in Health-Related Quality of Life Among Patients with Light-Chain (AL) Amyloidosis
Rizio AA, McCausland KL, Carty MK, Conrad A, Quock TP
Patient Related Outcome Measures 2023, 14:297-304
Published Date: 10 October 2023
The Transthyretin Amyloidosis – Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure
O'Connor M, Hsu K, Broderick L, McCausland KL, LaGasse K, Rebello S, Carty M, Lousada I
Patient Related Outcome Measures 2023, 14:213-222
Published Date: 7 July 2023
Work Outcomes Among Patients with Light Chain (AL) Amyloidosis: Findings from Three Patient Cohorts
Rizio AA, McCausland KL, White MK, Quock TP
Patient Related Outcome Measures 2021, 12:339-347
Published Date: 15 December 2021
Psychometric validation of the SF-36 Health Survey in light chain amyloidosis: results from community-based and clinic-based samples
White MK, McCausland KL, Sanchorawala V, Guthrie SD, Bayliss MS
Patient Related Outcome Measures 2017, 8:157-167
Published Date: 7 December 2017