Danish Palliative Care Database
Authors Groenvold M, Adsersen M, Hansen MB
Received 11 November 2015
Accepted for publication 18 February 2016
Published 25 October 2016 Volume 2016:8 Pages 637—643
Checked for plagiarism Yes
Review by Single-blind
Peer reviewers approved by Professor Pasquale Ferrante
Peer reviewer comments 2
Editor who approved publication: Professor Henrik Toft Sørensen
Mogens Groenvold,1,2 Mathilde Adsersen,1 Maiken Bang Hansen1
1The Danish Palliative Care Database (DPD) Secretariat, Research Unit, Department of Palliative Medicine, Bispebjerg Hospital, 2Department of Public Health, University of Copenhagen, Copenhagen, Denmark
Aims: The aim of the Danish Palliative Care Database (DPD) is to monitor, evaluate, and improve the clinical quality of specialized palliative care (SPC) (ie, the activity of hospital-based palliative care teams/departments and hospices) in Denmark.
Study population: The study population is all patients in Denmark referred to and/or in contact with SPC after January 1, 2010.
Main variables: The main variables in DPD are data about referral for patients admitted and not admitted to SPC, type of the first SPC contact, clinical and sociodemographic factors, multidisciplinary conference, and the patient-reported European Organisation for Research and Treatment of Cancer Quality of Life Questionaire-Core-15-Palliative Care questionnaire, assessing health-related quality of life. The data support the estimation of currently five quality of care indicators, ie, the proportions of 1) referred and eligible patients who were actually admitted to SPC, 2) patients who waited <10 days before admission to SPC, 3) patients who died from cancer and who obtained contact with SPC, 4) patients who were screened with European Organisation for Research and Treatment of Cancer Quality of Life Questionaire-Core-15-Palliative Care at admission to SPC, and 5) patients who were discussed at a multidisciplinary conference.
Descriptive data: In 2014, all 43 SPC units in Denmark reported their data to DPD, and all 9,434 cancer patients (100%) referred to SPC were registered in DPD. In total, 41,104 unique cancer patients were registered in DPD during the 5 years 2010–2014. Of those registered, 96% had cancer.
Conclusion: DPD is a national clinical quality database for SPC having clinically relevant variables and high data and patient completeness.
Keywords: specialized palliative care, cancer, quality indicator, patient-reported outcomes, multidisciplinary conference, EORTC QLQ-C15-PAL
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