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Disease-related information requirements in patients with Crohn’s disease

Authors Wu Q, Zhong J

Received 29 March 2018

Accepted for publication 29 May 2018

Published 27 August 2018 Volume 2018:12 Pages 1579—1586


Checked for plagiarism Yes

Review by Single-blind

Peer reviewers approved by Dr Cristina Weinberg

Peer reviewer comments 2

Editor who approved publication: Dr Naifeng Liu

Qiangqiang Wu, Jie Zhong

Department of Gastroenterology, Ruijin Hospital, School of Medicine, Shanghai Jiaotong University, Shanghai, People’s Republic of China

Aim: To explore the demands for different disease-related information and the acceptance of various information sources in patients with Crohn’s disease (CD).
Methods: This study included 159 patients with CD and was conducted from April 2017 to December 2017 in our hospital. We obtained the demographic characteristics of the patients and used the modified information demands questionnaire to assess patients’ disease information demands, covering 4 aspects which include general knowledge, fertility, clinical treatment, and daily management. Then, we analyzed the factors associated with the information demand. In addition, we studied the patients’ acceptance of different information sources.
Results: The disease-related information demands of patients with CD are generally high. Female patients, young patients, and patients with plans to have children have significantly higher information demands concerning fertility. The information demands in clinical treatment are higher in young patients. Patients living in the countryside and patients with a short disease duration have high information demands concerning life management. The patients’ acceptance of different information sources is variable. Doctor-mediated guidance, brochures, and videos are the top 3 patient choices for information sources.
Conclusion: Patients’ information demands concerning many aspects of CD are generally high. Certain demands are significantly associated with the demographic characteristics of the patients. Doctor-mediated guidance, brochures, and videos are the top 3 patient choices for information sources. Therefore, corresponding education programs can be developed to improve the physical and psychological health of CD patients in the future.

Keywords: Crohn’s disease, information demand, influencing factor, information source

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