Original Research

Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ)

Mathias SD, Burke L, Colwell HH, Mensing G, Savage W, Naik H

Patient Related Outcome Measures 2024, 15:17-30

Published Date: 14 February 2024