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Use of an interdisciplinary, participatory design approach to develop a usable patient self-assessment tool in atrial fibrillation

Authors MacCallum L, McGaw H, Meshkat N, Valentinis A, Beard Ashley L, Bhatia RS, Benson K, Ivers N, Leblanc K, Morra D

Received 10 July 2013

Accepted for publication 8 August 2013

Published 5 November 2013 Volume 2013:7 Pages 1139—1146

DOI https://doi.org/10.2147/PPA.S51285

Checked for plagiarism Yes

Review by Single-blind

Peer reviewer comments 6

Video abstract presented by Lori MacCallum, Heather McGaw, and Alissia Valentinis.

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Lori MacCallum,1,2 Heather McGaw,1 Nazanin Meshkat,3 Alissia Valentinis,4 Leslie Beard Ashley,5 Rajan Sacha Bhatia,3,6,7 Kaye Benson,7 Noah Ivers,6,8 Kori Leblanc,2,7 Dante Morra3,5,7

1Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, 2Leslie Dan Faculty of Pharmacy, University of Toronto, 3Department of Medicine, University of Toronto, Toronto, 4Taddle Creek Family Health Team, Toronto, 5Trillium Health Partners, Mississauga, 6Women's College Hospital, Toronto, 7Centre for Innovation in Complex Care, University Health Network, Toronto, 8Department of Family and Community Medicine, University of Toronto, Toronto, ON, Canada

Abstract: After identifying that significant care gaps exist within the management of atrial fibrillation (AF), a patient-focused tool was developed to help patients better assess and manage their AF. This tool aims to provide education and awareness regarding the management of symptoms and stroke risk associated with AF, while engaging patients to identify if their condition is optimally managed and to become involved in their own care. An interdisciplinary group of health care providers and designers worked together in a participatory design approach to develop the tool with input from patients. Usability testing was completed with 22 patients of varying demographics to represent the characteristics of the patient population. The findings from usability testing interviews were used to further improve and develop the tool to improve ease of use. A physician-facing tool was also developed to help to explain the tool and provide a brief summary of the 2012 Canadian Cardiovascular Society atrial fibrillation guidelines. By incorporating patient input and human-centered design with the knowledge, experience, and medical expertise of health care providers, we have used an approach in developing the tool that tries to more effectively meet patients' needs.

Keywords: patient education, atrial fibrillation, care gaps, patient care tools, patient self-assessment

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