Together for the Future – Development of a Digital Website to Support Chronic Obstructive Pulmonary Disease Self-Management: A Qualitative Study
Authors Kjellsdotter A, Andersson S, Berglund M
Received 23 January 2021
Accepted for publication 5 March 2021
Published 6 April 2021 Volume 2021:14 Pages 757—766
Checked for plagiarism Yes
Review by Single anonymous peer review
Peer reviewer comments 3
Editor who approved publication: Dr Scott Fraser
Anna Kjellsdotter,1,2 Susanne Andersson,3,4 Mia Berglund2
1Research and Development Centre, Skaraborg Hospital, Skövde, Sweden; 2School of Health Sciences, Skövde University, Skövde, Sweden; 3Department of Health Sciences, University West, Trollhättan, Sweden; 4Research, Education, Development & Innovation, Primary Health Care, Region Västra Götaland, Sweden
Correspondence: Anna Kjellsdotter
Research and Development Centre, Skaraborg Hospital Skövde, Skövde, S-541 85, Sweden
Tel +46 768051962
Email [email protected]
Background: Symptom burden, impaired functional performance and decreased quality of life are not only consequences of the underlying physiological disorder chronic obstructive pulmonary disease (COPD) but also dependent on a patient’s ability to learn to live with and manage their illness. A digital website may be important for empowering patients with COPD to learn about and self-manage their illness. The aim of this study was to describe a developing process of a digital COPD-web as a part of a self-management education program for persons living with COPD.
Methods: A qualitative approach with a phenomenological perspective was used. The study was based on group and individual interviews with a multidisciplinary COPD-team and patients who developed the COPD-web.
Results: The developing process appears as a person-centred and holistic self-care approach both in content and development. Developing a digital COPD-web requires ongoing multidisciplinary collaboration and spawns a sense of pride that reinforces shared responsibility. The phenomenon consists of four constituents: learning by participating in development, the patient perspective as guiding approach, responsibility and motivation as driving forces and digital technology as a knowledge arena.
Conclusion: The results indicate that constructive collaboration between a multidisciplinary COPD-team and patients as co-creators in an ongoing creative and reflective process is a key concept to develop a digital COPD-web with a holistic approach. Digital resources in the future might create time and space for reflective conversations in a COPD-web with virtual chatrooms.
Keywords: COPD-team, digital tool, self-management, sustainable learning, patient involvement
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