The role of caregivers in interfacility care transitions: a qualitative study

Lianne Jeffs,¹ Marianne Saragosa,¹ Madelyn P Law,² Kerry Kuluski,³ Sherry Espin,⁴ Jane Merkley<sup>5

1</sup>Keenan Research Centre of the Li Ka Shing Knowledge Institute, St Michael’s Hospital, Toronto, ²Department of Health Science, Brock University, St Catharines, ³Lunenfeld-Tanenbaum Research Institute, Sinai Health System, ⁴Daphne Cockwell School of Nursing, Ryerson University, ⁵Executive Offices, Sinai Health System, Toronto, ON, Canada

Abstract: A qualitative design was used to explore the nature of caregiver involvement in care transitions of patients being transferred from an acute care hospital to a rehabilitation hospital. Participants included older adults (n=13), informal caregivers (n=9), and health care professionals (n=50) from inpatient orthopedic units in two academic health science centers and one orthopedic inpatient rehabilitation unit. Semistructured interviews were conducted, audiotaped, and transcribed. Directed content analysis revealed the following four themes: watching, being an active care provider, advocating, and navigating the health care system. Participants described being actively involved in the care of their family member, yet they were not actively engaged by health care professionals to be involved in the care of their family member. There is a need to reconcile the tension between the level of involvement of caregivers in the care of family members who are patients and the level of engagement throughout the care transition. By providing relevant information and authentically engaging caregivers as equal partners in the care transition, they are better able to navigate the health care system post-transfer to the rehabilitation setting and discharge to home.

Keywords: caregiver, care transitions, elderly, qualitative