The relationship between caregiver impacts and the unmet needs of survivors of stroke
Received 30 March 2015
Accepted for publication 23 May 2015
Published 27 July 2015 Volume 2015:9 Pages 1065—1073
Checked for plagiarism Yes
Review by Single-blind
Peer reviewer comments 3
Editor who approved publication: Dr Johnny Chen
Nadine E Andrew,1 Monique F Kilkenny,1,2 Rebecca Naylor,3 Tara Purvis,1 Dominique A Cadilhac1,2
1Translational Public Health and Evaluation Division, Stroke and Ageing Research, School of Clinical Sciences at Monash Health, Monash University, Clayton, 2Florey Institute of Neuroscience and Mental Health, Heidelberg, 3National Stroke Foundation, Melbourne, VIC, Australia
Background: Caregivers play a crucial role in meeting the needs of survivors of stroke. Yet, little is known about how they are impacted by their caregiving role.
Objectives: To describe the relationship between survivor long-term unmet needs (>12 months) and caregiver impacts, and identify characteristics that are associated with reported moderate to severe impacts on caregivers.
Method: This was a cross-sectional survey using data from the Australian Stroke Survivor and Carer Needs Survey. Community dwelling adults 12+ months poststroke and their caregivers participated. Caregivers and survivors were asked about the extent to which the domains of work, leisure and family, and friend and spousal relationships had been impacted using a Likert scale of responses. The extent to which survivor needs were being met was measured over the domains of health, everyday living, work, leisure, and finances, and the total number of unmet needs was calculated. The association between survivor unmet needs and caregiver impacts was assessed using multivariable logistic regression adjusted for caregiver and survivor characteristics.
Results: Of the 738 completed survivor surveys, 369 contained matched caregiver data (survivors: median age, 71 years; 67% male) (caregivers: median age, 64 years; 26% male). For caregivers, the domains of work, leisure, and friendships were most impacted. The odds of a caregiver experiencing moderate to extreme impacts increased with the number of reported survivor unmet needs. This was greatest for spousal (aOR [adjusted odds ratio]: 1.14; 95% CI [confidence interval]: 1.07, 1.21; P<0.001) and friend relationships (aOR: 1.14; 95% CI: 1.07, 1.21; P<0.001). Caring for a survivor who needed daily living assistance was associated with moderate to extreme caregiver impacts across all domains.
Conclusion: Caregivers of survivors of stroke experience large negative impacts, the extent to which is associated with survivors unmet needs. Targeted, long-term solutions are needed to support survivors and caregivers living in the community.
Keywords: outcomes, community care, disability, burden, support
Other article by this author:
Khera J, Andrew NE, Cadilhac DA, Purvis T, Fahey MC, Rawicki HB
Published Date: 15 December 2015
Readers of this article also read:
Jeong HR, An SSA
Published Date: 19 November 2015
Finney Rutten LJ, Morris MA, Schrader LM, Manemann SM, Pathak J, Dimler R, Roger VL
Published Date: 27 July 2015
Perspectives of patients on factors relating to adherence to post-acute coronary syndrome medical regimens
Lambert-Kerzner A, Havranek EP, Plomondon ME, Fagan KM, McCreight MS, Fehling KB, Williams DJ, Hamilton AB, Albright K, Blatchford PJ, Mihalko-Corbitt R, Bryson CL, Bosworth HB, Kirshner MA, Del Giacco EJ, Ho PM
Published Date: 24 July 2015
Cai Y, An SSA, Kim SY
Published Date: 14 July 2015
Published Date: 16 April 2014
Ashwanikumar N, Kumar NA, Nair SA, Kumar GS
Published Date: 15 November 2012
Deepa G, Thulasidasan AK, Anto RJ, Pillai JJ, Kumar GS
Published Date: 27 July 2012
Rao S, Song Y, Peddie F, Evans AM
Published Date: 20 June 2011
Pitipol Choopong, Nattaporn Tesavibul, Nattawut Rodanant
Published Date: 14 July 2010
Jim Moselhy, Tasnim Vira, Fei-Fei Liu, et al
Published Date: 24 August 2009