Back to Journals » Patient Preference and Adherence » Volume 14

The Experiences of Multiple Sclerosis Patients’ Family Caregivers at the First Hospitalization of Their Patients: A Qualitative Study

Authors Tehranineshat B, Yektatalab S, Momennasab M, Bijani M, Mohammadi F

Received 10 April 2020

Accepted for publication 23 June 2020

Published 13 July 2020 Volume 2020:14 Pages 1159—1172

DOI https://doi.org/10.2147/PPA.S257746

Checked for plagiarism Yes

Review by Single anonymous peer review

Peer reviewer comments 3

Editor who approved publication: Dr Johnny Chen


Banafsheh Tehranineshat,1 Shahrzad Yektatalab,2 Marzieh Momennasab,1 Mostafa Bijani,3 Fateme Mohammadi4

1Community-Based Psychiatric Care Research Center, Department of Nursing, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran; 2Community-Based Psychiatric Care Research Center, Department of Mental Health and Psychiatric Nursing, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran; 3Department of Medical Surgical Nursing, Fasa University of Medical Sciences, Fasa, Iran; 4Chronic Diseases (Home Care) Research Center, Autism Spectrum Disorders Research Center, School of Nursing and Midwifery, Hamadan University of Medical Sciences, Hamadan, Iran

Correspondence: Shahrzad Yektatalab
Community-Based Psychiatric Care Research Center,Department of Mental Health and Psychiatric Nursing,School of Nursing and Midwifery, Shiraz University of Medical Sciences, Zand St., Nemazee Sq.,7193613119, Shiraz, Iran
Email yektash@sums.ac.ir

Background and Aim: Being diagnosed with multiple sclerosis is usually accompanied by emotional trauma for patients and their families. The chronic, progressive, and unpredictable nature of the disease spells the patients’ long-term need for care from their families. As soon as a diagnosis is made, family caregivers are faced with many challenges. The present study aims to identify family caregivers’ experiences at the first hospitalization of their patients.
Materials and Methods: The present study is a work of qualitative research and uses the conventional content analysis approach. It lasted from July 2019 to March 2020. The subjects were selected via purposeful sampling. To collect data, the researchers conducted in-depth, semi-structured interviews with 18 family caregivers of patients with multiple sclerosis. The collected data were analyzed using MAXQDA 2007.
Results: Analysis of the data yielded three themes: peaceful environment, need for continuing full support, and religion-based coping strategies.
Conclusion: The findings of the present study can be used to develop support programs that address family caregivers’ problems and needs to assist them in accepting and coping with the conditions of their patients, thereby increasing the quality of care provided to patients with multiple sclerosis.

Keywords: family caregivers, hospitalization, multiple sclerosis, patients

Creative Commons License This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution - Non Commercial (unported, v3.0) License. By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms.

Download Article [PDF]  View Full Text [HTML][Machine readable]