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Telling the story of childhood cancer: an evaluation of the Discovery Interview methodology conducted within the Queensland Children's Cancer Centre

Authors Slater P, Philpot S

Received 2 February 2016

Accepted for publication 14 March 2016

Published 2 May 2016 Volume 2016:8 Pages 39—46


Checked for plagiarism Yes

Review by Single-blind

Peer reviewer comments 2

Editor who approved publication: Dr Johnny Chen

Penelope J Slater,1 Shoni P Philpot2

1Queensland Children's Cancer Centre, Lady Cilento Children's Hospital, Children's Health Queensland, 2Queensland Cancer Control Analysis Team, Princess Alexandra Hospital, Brisbane, QLD, Australia

Abstract: This paper evaluates the process and impact of the Discovery Interview methodology developed in the National Health Service and applied in the Queensland Children's Cancer Centre. It shows how this methodology supports the family-centered care philosophy of the organization and gives staff insight into the experience of the families they care for. In total, 17 Discovery Interviews recorded during 2012–2014 were transcribed, deidentified, condensed, and read back to 222 staff in 20 different meetings. Families and staff involved in the process provided positive feedback. Over 53% of staff found these sessions extremely valuable, and 46% rated them as valuable. Discovery Interviews were shown to be a powerful tool to engage with families and staff to improve the experience of families in the Queensland Children's Cancer Centre. The sessions where Discovery Interviews were read to clinical teams raised their awareness of the perspectives of families and impacted on the way they delivered care and interacted with families. Staff described the stories as insightful and valued hearing them and discussing ways to improve service, including individual clinical practice, service processes, and family supports.

Keywords: family experience, family-centered care, consumer engagement, service improvement, narratives

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