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Palliative care for patients in the USA with amyotrophic lateral sclerosis: current challenges

Authors Houseman G, Kelley M

Received 3 July 2015

Accepted for publication 22 October 2015

Published 24 November 2015 Volume 2015:5 Pages 119—127

DOI https://doi.org/10.2147/NRR.S77066

Checked for plagiarism Yes

Review by Single-blind

Peer reviewers approved by Dr Barbara Joyce

Peer reviewer comments 3

Editor who approved publication: Dr Cindy Hudson


Gail Houseman,1 Mary Kelley2

1The ALS Association Greater Philadelphia Chapter, Ambler, PA, USA; 2Department of Neurology, ALS Center at Penn Medicine, Philadelphia, PA, USA

Abstract: Amyotrophic lateral sclerosis (ALS) is a motor neuron disease that results in eventual paralysis of all voluntary muscles. Cognitive impairment may be a co-occurring condition with the ALS patient. Palliative care, which involves symptom management, is the most utilized treatment of choice. Managing the symptoms of ALS can be challenging. This paper provides experience-based facts on daily care provision in the USA and some practical guidelines.

Keywords: amyotrophic lateral sclerosis, ALS, palliative care, challenges, symptom management

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