“I wish they could be in my shoes”: patients’ insights into tertiary health care for type 2 diabetes mellitus
Authors Cotugno JD, Ferguson M, Harden H, Colquist S, Stack AA, Zimmerman JI, Russell AW, Ball LE, Hickman IJ
Received 26 June 2015
Accepted for publication 26 August 2015
Published 17 November 2015 Volume 2015:9 Pages 1647—1655
Checked for plagiarism Yes
Review by Single-blind
Peer reviewers approved by Dr Doris Leung
Peer reviewer comments 2
Editor who approved publication: Dr Johnny Chen
Jacqueline D Cotugno,1 Maree Ferguson,1,2 Hazel Harden,3 Shoni Colquist,3 Annabelle A Stack,1 Jane I Zimmerman,4 Anthony W Russell,4,5 Lauren E Ball,6 Ingrid J Hickman1,7
1Department of Nutrition and Dietetics, Princess Alexandra Hospital, 2School of Human Movement and Nutrition Sciences, The University of Queensland, 3INNIS Partnership, Brisbane, 4Department of Diabetes & Endocrinology, Princess Alexandra Hospital, 5School of Medicine, University of Queensland, 6Menzies Health Institute Queensland, Griffith University, 7The Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia
Background: Insightful accounts of patient experience within a health care system can be valuable for facilitating improvements in service delivery.
Objective: The aim of this study was to explore patients’ perceptions and experiences regarding a tertiary hospital Diabetes and Endocrinology outpatient service for the management of type 2 diabetes mellitus (T2DM).
Method: Nine patients participated in discovery interviews with an independent trained facilitator. Patients’ stories were synthesized thematically using a constant comparative approach.
Results: Three major themes were identified from the patients’ stories: 1) understanding T2DM and diabetes management with subthemes highlighting that specialist care is highly valued by patients who experience a significant burden of diabetes on daily life and who may have low health literacy and low self confidence; 2) relationships with practitioners were viewed critical and perceived lack of empathy impacted the effectiveness of care; and 3) impact of health care systems on service delivery with lack of continuity of care relating to the tertiary hospital model and limitations with appointment bookings negatively impacting on patient experience.
Discussion: The patients’ stories suggest that the expectation of establishing a productive, ongoing relationship with practitioners is highly valued. Tertiary clinics for T2DM are well placed to incorporate novel technological approaches for monitoring and follow-up, which may overcome many of the perceived barriers of traditional service delivery.
Conclusion: Investing in strategies that promote patient–practitioner relationships may enhance effectiveness of treatment for T2DM by meeting patient expectations of personalized care. Future changes in service delivery would benefit from incorporating patients as key stakeholders in service evaluation.
Keywords: diabetes mellitus, discovery interview, health care, personal narratives
This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution - Non Commercial (unported, v3.0) License. By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms.Download Article [PDF] View Full Text [HTML][Machine readable]
Readers of this article also read:
Causative factors for formation of toxic islet amyloid polypeptide oligomer in type 2 diabetes mellitus
Jeong HR, An SSA
Published Date: 19 November 2015
Exploring older adults’ perceptions of a patient-centered education manual for hip fracture recovery: “everything in one place”
Tsui K, Fleig L, Langford DP, Guy P, MacDonald V, Ashe MC
Published Date: 17 November 2015
Mutations in presenilin 2 and its implications in Alzheimer’s disease and other dementia-associated disorders
Cai Y, An SSA, Kim SY
Published Date: 14 July 2015
Prozorova GF, Pozdnyakov AS, Kuznetsova NP, Korzhova SA, Emel’yanov AI, Ermakova TG, Fadeeva TV, Sosedova LM
Published Date: 16 April 2014
Ashwanikumar N, Kumar NA, Nair SA, Kumar GS
Published Date: 15 November 2012
A novel preparation method for silicone oil nanoemulsions and its application for coating hair with silicone
Hu Z, Liao M, Chen Y, Cai Y, Meng L, Liu Y, Lv N, Liu Z, Yuan W
Published Date: 12 November 2012
Deepa G, Thulasidasan AK, Anto RJ, Pillai JJ, Kumar GS
Published Date: 27 July 2012
Particle size reduction to the nanometer range: a promising approach to improve buccal absorption of poorly water-soluble drugs
Rao S, Song Y, Peddie F, Evans AM
Published Date: 20 June 2011
Pitipol Choopong, Nattaporn Tesavibul, Nattawut Rodanant
Published Date: 14 July 2010
Characterization of complexation of poly (N-isopropylacrylamide-co-2-(dimethylamino) ethyl methacrylate) thermoresponsive cationic nanogels with salmon sperm DNA
Jim Moselhy, Tasnim Vira, Fei-Fei Liu, et al
Published Date: 24 August 2009