Back to Journals » Clinical, Cosmetic and Investigational Dermatology » Volume 13

Individual Burden of Psoriasis (I-BOP): Building and Validation of a New Scoring Tool for Patients with Psoriasis

Authors Ezzedine K, Fougerousse AC, Aubert R, Monfort JB, Reguiaï Z, Shourick J, Taieb C, Maccari F

Received 25 February 2020

Accepted for publication 16 April 2020

Published 4 May 2020 Volume 2020:13 Pages 325—332

DOI https://doi.org/10.2147/CCID.S249776

Checked for plagiarism Yes

Review by Single-blind

Peer reviewer comments 2

Editor who approved publication: Dr Jeffrey Weinberg


Khaled Ezzedine, 1 Anne Claire Fougerousse, 2, 3 Roberte Aubert, 4 Jean-Benoît Monfort, 5 Ziad Reguiaï, 3, 6 Jason Shourick, 7 Charles Taieb, 8, 9,* François Maccari 3, 10,*

1EA EpiDermE UPEC-Université Paris-Est Créteil, Creteil, France; 2Hôpital d’instruction des armées, Saint-Mandé, France; 3Resopso, Paris, France; 4France Psoriasis, Association de Patients, Paris, France; 5Hôpital Tenon, Paris, France; 6Service de Dermatologie, Polyclinique Courlancy-Bezannes, Reims, France; 7Université Paris Sud, Paris, France; 8Santé Publique, Hôpital Necker Enfants Malades, Paris, France; 9European Market Maintenance Assessment, Fontenay-sous-Bois, France; 10Private Practice, La Varenne Saint Hilaire, France

*These authors contributed equally to this work

Correspondence: Charles Taieb
Tel +33 771 772 100
Email charles.taieb@emma.clinic

Background: Psoriasis impacts independently of its severity on patients’ lifestyle and quality of life (QoL).
Aim: To build a tool for assessing the patient-reported psoriasis burden.
Methods: An expert group created a questionnaire using a standardized methodology building questionnaires assessing quality of life issues. The questionnaire was translated from French into a cultural and linguistically validated US English version.
Results: A conceptual questionnaire of 54 questions was created. The confirmatory analyses resulted in a 10-feature questionnaire divided into 4 internally consistent domains with a Cronbach’s alpha coefficient of 0.9. It was reproducible and highly reliable. It correlated well with the Dermatology Life Quality Index (DLQI), Perceived Stress Scale (PSS), and SF-12 mental and SF12 physical scores.
Conclusion: This tool allows for the first time to assess the burden of psoriasis patients. Its use may allow improving medical and nonmedical patient care, thus improving their daily life.

Keywords: disease burden, psoriasis, quality of life, questionnaire, standardized method

Creative Commons License This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution - Non Commercial (unported, v3.0) License. By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms.

Download Article [PDF]  View Full Text [HTML][Machine readable]