Hemophilia and sexual health: results from the HERO and B-HERO-S studies
Received 6 April 2019
Accepted for publication 9 July 2019
Published 14 August 2019 Volume 2019:10 Pages 243—255
Checked for plagiarism Yes
Review by Single-blind
Peer reviewer comments 2
Editor who approved publication: Dr Robert Howland
Greig Blamey,1 Cathy Buranahirun,2 Andrea Buzzi,3 David L Cooper,4 Susan Cutter,5 Sue Geraghty,6 Hossam Saad,4 Renchi Yang7
1Physiotherapy Department, Health Sciences Centre, Winnipeg, Manitoba, Canada; 2Children’s Center for Cancer and Blood Diseases, Keck School of Medicine, University of Southern California/Children’s Hospital Los Angeles, Los Angeles, CA, USA; 3Fondazione Paracelso, Milan, Italy; 4Novo Nordisk Inc., Plainsboro, NJ, USA; 5Penn Comprehensive Hemophilia and Thrombosis Program, Hospital of the University of Pennsylvania, Philadelphia, PA, USA; 6University of Colorado Hemophilia and Thrombosis Center-Retired, Denver, CO, USA; 7Tianjin Hemophilia Center, Tianjin, People’s Republic of China
Background: Sexual health plays a primary role in quality of life (QoL) for many people, including those with hemophilia; however, there is little information available about sexual relationships and satisfaction in patients with hemophilia.
Methods: To address this issue, the Hemophilia Experiences, Results and Opportunities (HERO) and the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) studies included questions from the Male Sexual Health Questionnaire (MSHQ).
Results: Although these data were not statistically analyzed for comparisons between the 3 populations (HERO, HERO US only, and B-HERO-S), in general, participants in the HERO survey appeared to be more satisfied with their sexual relationship than participants in the B-HERO-S survey. In addition, many patients, especially those outside the United States, reported that they had not discussed sexual health with their doctor or other members of the hemophilia treatment center team. While the topic of sexual health has been infrequently explored in men with hemophilia, this is the first time it has been investigated in women with hemophilia.
Conclusion: The results of these studies demonstrate that the impact of hemophilia extends to intimacy and suggest the need for large-scale studies in additional countries to explore further the factors associated with sexual health issues in people with hemophilia.
Keywords: Male Sexual Health Questionnaire, quality of life, sexual relationships
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