Health care professionals dealing with hemophilia: insights from the international qualitative study of the HERO initiative
Received 22 January 2019
Accepted for publication 2 April 2019
Published 9 May 2019 Volume 2019:12 Pages 361—375
Checked for plagiarism Yes
Review by Single-blind
Peer reviewer comments 2
Editor who approved publication: Dr Scott Fraser
Silvia Potì,1 Laura Palareti,1 Frederica RMY Cassis,2 Sonia Brondi1
1Department of Education Studies “Giovanni Maria Bertin”, University of Bologna, 40126 Bologna, Italy; 2Faculty of Medicine Clinics Hospital, University of São Paulo, São Paulo, SP, 05403-000, Brazil
Background: Assessing the viewpoints of health care professionals concerning their work with chronic patients is a relatively new research topic, widely overlooked in the literature. However, understanding their subjective work experience is highly relevant for identifying problems and perceived resources, enhancing health service organisation, improving relationships or communication with patients, and maintaining well-being.
Purpose and method: Qualitative data from the “Haemophilia Experience, Results and Opportunities” Initiative – a research program aimed at investigating the psychosocial aspects of hemophilia – were used to evaluate the experiences of 62 professionals from seven countries around the world. Semi-structured interviews were submitted to thematic analysis of elementary contexts with the aid of T-Lab software.
Results: Five dominant themes emerged, identifying the main challenges that professionals have to deal with in their everyday work practice: caring for impaired adult patients; handling policies and stakeholders; providing counselling on diagnosis and reproductive choices; considering the role of family dynamics; coping with adolescent patients.
Conclusion: The outcomes of the study provide an opportunity to develop the area of the non-technical skills in the core curriculum of those who work with chronic illnesses by focusing on cross-professional competences and by improving a comprehensive care model for hemophilia patients.
Keywords: health care professionals, subjective experience, chronic illness, hemophilia, cross-cultural
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