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Paper published by Ms Laurie Burke:
Original Research
Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ)
Mathias SD, Burke L, Colwell HH, Mensing G, Savage W, Naik H
Patient Related Outcome Measures 2024, 15:17-30
Published Date: 14 February 2024