Development of a Short Form of the Questionnaire Quality from the Patient’s Perspective for Palliative Care (QPP-PC)
Received 16 January 2020
Accepted for publication 8 April 2020
Published 12 June 2020 Volume 2020:13 Pages 495—506
Checked for plagiarism Yes
Review by Single-blind
Peer reviewer comments 4
Editor who approved publication: Dr Scott Fraser
Tuva Sandsdalen,1 Vigdis Abrahamsen Grøndahl,2 Bodil Wilde-Larsson1,3
1Faculty of Social and Health Sciences, Department of Health and Nursing Sciences, Inland Norway University of Applied Sciences, Elverum, Norway; 2Faculty of Health and Welfare Sciences, Østfold University College, Halden, Norway; 3Faculty of Health, Science and Technology, Department of Health Science, Discipline of Nursing Science, Karlstad University, Karlstad, Sweden
Correspondence: Tuva Sandsdalen
Department of Health and Nursing Sciences, Inland Norway University of Applied Sciences, Norway
Tel +47 62430226
Purpose: Patients’ views on quality are important to improve person-centered palliative care. There is a lack of short, validated instruments incorporating patients’ perspectives of the multidisciplinary palliative care services. The aim of this study was to develop a short form of the instrument Quality from the Patient’s Perspective for Palliative Care (QPP-PC) and to describe and compare patients’ perceptions of the subjective importance (SI) of care aspects and their perceptions of care received (PR).
Methods: A cross-sectional study was conducted in Norway including 128 patients (67% response rate) in four palliative care contexts. The QPP-PC, based on a person-centered theoretical framework, incorporating the multidisciplinary palliative care, comprises 4 dimensions; medical–technical competence, physical–technical conditions, identity-oriented approach and sociocultural atmosphere, 12 factors (49 items) and 3 single items. The instrument measures SI and PR. Development of the short form of the QPP-PC was inspired by previously published methodological guidelines. Descriptive statistics, paired t-tests, confirmatory factor analysis and Cronbach’s α were used.
Results: The short form of QPP-PC consists of 4 dimensions, 20 items and 4 single items. Psychometric evaluation showed a root-mean-square error of approximation (RMSEA) value of 0.109 (SI). Cronbach’s α values ranged between 0.64 and 0.85 for most dimensions on SI scales. Scores on SI and PR scales were mostly high. Significantly higher scores for SI than PR were present for the identity-oriented approach dimension, especially on items about information.
Conclusion: RMSEA value was slightly above the recommended level. Cronbach’s α was acceptable for most dimensions. The short form of QPP-PC shows promising results and may be used with caution as an indicator of person-centered patient-reported experience measures evaluating the multidisciplinary palliative care for patients in a late palliative phase. However, the short version of QPP-PC needs to be further validated using new samples of patients.
Keywords: palliative care, person-centered care, patient reported experience measures, quality of healthcare; quality from the patients’ perspective specific for palliative care; QPP-PC
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