Back to Browse Journals » Journal of Multidisciplinary Healthcare » Volume 4

Psychosocial dimensions of SLE: implications for the health care team

Authors Beckerman NL, Auerbach C, Blanco I

Published Date April 2011 Volume 2011:4 Pages 63—72

DOI http://dx.doi.org/10.2147/JMDH.S19303

Published 5 April 2011

Nancy L Beckerman1, Charles Auerbach1, Irene Blanco2
1Yeshiva University, Wurzweiler School of Social Work, New York; 2Albert Einstein College of Medicine, Bronx, NY, USA

Background: The purpose of this exploratory study was threefold, ie, to clarify the unique psychosocial challenges facing those living with systemic lupus erythematosus (SLE), to distinguish which sociodemographic variables impact the lives of SLE patients, and generate knowledge regarding the way patients perceive SLE medication regimens.
Methods: This was a cross-sectional exploratory study in 378 patients diagnosed with SLE and receiving services from the SLE Lupus Foundation in New York City. In addition to sociodemographic variables, the instrument used consisted of two scales, ie, the Systemic Lupus Erythematosus Needs Questionnaire (SLENQ) and the Multidimensional Health Locus of Control Scale, as well as questions regarding subjective perceptions of side effects from SLE medication.
Results: The highest general cause of self-reported depressive and anxious feelings was changes in appearance due to SLE, and limitations in physical abilities due to SLE (primarily from muscle and joint pain). The higher the sense of control over SLE, the less likely respondents were to report feeling depressed and anxious. African-American and Hispanic SLE patients reported a higher level of unmet psychological needs due to SLE than did their other ethnic counterparts. Weight gain and hair loss were the most likely medication side effects and also the most likely causes of SLE-related depression and anxiety.
Conclusion: Those living with SLE are at risk for feelings of depression and anxiety. African-American and Hispanic women are at higher risk for these emotional states. Comprehensive assessment across the disciplines should screen this group of patients for depression and anxiety, and be prepared to refer them to patient education and social work counseling as indicated.

Keywords: lupus, psychosocial impact of illness, multidisciplinary

Download Article [PDF] View Full Text [HTML] 

Creative Commons License This work is published by Dove Medical Press Limited, and licensed under Creative Commons Attribution - Non Commercial (unported, v3.0) License. The full terms of the License are available at http://creativecommons.org/licenses/by-nc/3.0/. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. Permissions beyond the scope of the License are administered by Dove Medical Press Limited. Information on how to request permission may be found at: http://www.dovepress.com/permissions.php

Readers of this article also read:

Active home-based cancer treatment

Bordonaro S, Raiti F, Di Mari A, Lopiano C, Romano F, Pumo V, Rametta Giuliano S, Iacono M, Lanteri E, Puzzo E, Spada S, Tralongo P

Journal of Multidisciplinary Healthcare 2012, 5:137-143

Published Date: 19 June 2012

Anorexia nervosa: treatment expectations – a qualitative study

Paulson-Karlsson G, Nevonen L

Journal of Multidisciplinary Healthcare 2012, 5:169-177

Published Date: 13 July 2012

Health research barriers in the faculties of two medical institutions in India

Alamdari A, Venkatesh S, Roozbehi A, Kannan AT

Journal of Multidisciplinary Healthcare 2012, 5:187-194

Published Date: 10 August 2012

Successful testing and treating of HIV/AIDS in Indonesia depends on the addiction treatment modality

Iskandar S, de Jong CA, Hidayat T, Siregar IM, Achmad TH, van Crevel R, van der Ven A

Journal of Multidisciplinary Healthcare 2012, 5:329-336

Published Date: 14 December 2012

Terminology used to describe health care teams: an integrative review of the literature

Chamberlain-Salaun J, Mills J, Usher K

Journal of Multidisciplinary Healthcare 2013, 6:65-74

Published Date: 3 March 2013

Determinants of physical activity in primary school students using the health belief model

Ar-yuwat S, Clark MJ, Hunter A, James KS

Journal of Multidisciplinary Healthcare 2013, 6:119-126

Published Date: 21 March 2013

Usefulness of a selective neutrophil elastase inhibitor, sivelestat, in acute lung injury patients with sepsis

Miyoshi S, Hamada H, Ito R, Katayama H, Irifune K, Suwaki T, Nakanishi N, Kanematsu T, Dote K, Aibiki M, Okura T, Higaki J

Drug Design, Development and Therapy 2013, 7:305-316

Published Date: 10 April 2013

Interprofessional practice in primary care: development of a tailored process model

Stans SEA, Stevens JGA, Beurskens AJHM

Journal of Multidisciplinary Healthcare 2013, 6:139-147

Published Date: 18 April 2013